When talking about people with hemophilia, use language that creates understanding, not pity, says columnist. Words matter.
A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII deficiency.
Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.
Half of the children in Chile with severe hemophilia A and B exhibit joint damage despite receiving preventive treatment, a ...
When caregiving for a spouse, it's important to avoid becoming overprotective of their feelings, says columnist.
Extended half-life therapies Eloctate and Alprolix safely and effectively controlled bleeds in hemophilia patients' surgeries ...
More often, Caeleb’s pain hums like a low-level alarm. He’s a living testament to resilience, with a will to keep moving that surpasses his hurt. This is the rhythm of his life, and he has learned to ...
Unless you walk behind me and see the scar running down my spine, you wouldn’t know I have physical limitations. Admitting them often makes me feel less than. But it’s also a testament to my ...
Hemophilia is a blood disorder that is characterized by a shortage of specific clotting factors that help to form blood clots and stop bleeding. Historically, the primary treatment for hemophilia is ...